Last night was another restless night. Between the extreme wind with sleet hammering the house and Nathan up often to pee there was no long periods of sleep, we are hoping there is better/longer sleep tonight.
Nathan did not want to get out of bed this morning. Ironically at 6am he wanted to be up for the day but when told he needed a 7 on his clock, he fell back to sleep until woken around 8am. He was pretty determined that he wasn't going to the clinic and that he wasn't getting any more leg needles. I gave him some time to think about it and he called me back up to discuss. He was very rational this morning and understood why he had to go when I explained it to him. He concluded that it wouldn't hurt if he didn't think about it.
The wait at the clinic was long again. Our appointment was for 9am. 11am was when they were ready for us. A few more children were brought for emergency examinations. One particular little boy who was to be done having treatment completely this fall, had a port that became faulty so now will undergo surgery to remove the one he has and to provide him with a new one. These issues that we keep seeing with other children serve to remind us just how many *unexpected* things can go wrong.
When called to the room we had nurse Andrea who is replacing nurse Cathy until she returns from sick leave. Nathan was awesome today. He listened when told to pick a leg to start on. He then did his counting and breathing extremely well and focused. There were no tears, no fight and at the end proclaimed "that didn't even hurt". But he controlled the situation, telling Andrea when he was ready and by counting down to the needle.
After about a 40 minute wait we decided to head home. Nathan has been complaining of stomach pain since Monday and is more sensitive to smells making his appetite drop. And no, the steroids have not yet kicked in, with the exception of the mood swings; unfortunately, those are in full force. We were home for lunch and then when Carter needed to go back, he decided to come with me to run some errands. I enjoy it when he does as it is an easy way to get him to nap. So an hour later, he was a little more refreshed. When we picked Carter up from school and returned home he wanted to stay outside so we did. It wasn't exactly balmy out there but at least the kids had some fresh air.
Again Nathan deferred supper. I think the smells of cooking is what gets to him. So a little later, he had 2 bowls of porridge and half a banana. We can see that the mouth sores are also starting so will encourage more yogurt tomorrow to help with those. He drank a tonne of milk today so am sure will be another night of steady trips to the bathroom.
p.s. The annual Miller\Mcleod Hockey Draft is back under way. Things were hectic before the start of playoffs so we waited until the first round was done and let the kids pick their teams. Ella has started off with a huge lead having all the Washington and Anaheim top players, but if Detroit pulls through the boys might have a chance of catching her. Check it out in the links section or here
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